IN SPIRIT Health Information and Resources

 

Straight Talk about Disability Benefits and How to Apply

The Social Security and Disability Resource Center is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. SSDRC.com

 

Free Service for Speech Disabled

Speech to Speech is a free service to people with speech disabilities. It provides a third-party communication assistance for people with difficulty in being understood over the telephone. It is available for personal, business and medical communications by phone. www.speechtospeech.org

Videos on yoga for quadriplegics

Christopher & Dana Reeve Foundation

SCI Cure Research - links

Miami Project

Reeve-Irvine Research Center

Individualized Exercise Based Therapy for Bay Area Residents

Spinal Cord Injury Functional Integrated Therapy (SCI-FIT) offers a comprehensive, post-traditional, exercise based therapy program for individuals who are living with spinal cord injuries and other neurological conditions to help them achieve their maximum functional outcome. Based in Pleasanton, find out more on their website: www.sci-fit.org

 

The Kessler Foundation supports research in rehabilitation to improve the lives of persons with disabling, paralyzing disorders such as MS, spinal cord injury, stroke and traumatic brain injury. www.kesslerfoundation.org

.......................

Bladder & Bowel Care Articles

Maintaining bowel and bladder health are among the most crucial and challenging issues faced by people with quadriplegia. There are many techniques used to achieve and maintain both bowel and bladder function. There are also many inherent difficulties. The following sites may be of help in addressing some of the issues and choices involved.
Wheelchair Life: Badder & Bowel
New Mobility.Bladder Matters: Ditching Drug Side Effects
New Mobility.Bladder Matters: UTI Update
Sci-Info-Pages Spinal Cord Injury Bowel Management
Apparelyzed Bowel & Bladder forums

.......................
Cleaning and Caring for Tracheostomy Equipment

.......................

Pneumonia Preventative Steps

Persons with high level quadriplegia are about 150 times more likely to die from pneumonia than the general population. In addition to seeing a doctor and getting appropriate vaccinations and treatments, the following simple steps can help prevent pneumonia:

• Drink plenty of liquids
• Do breathing exercises, with assistance if needed
• Breathe through your nose, not your mouth
• Sit right if possible
• Lose weight, eat healthy foods
• Sleep on your side, not on your back
• Limit time in a supine position
• Change positions at night if possible
• Wear abdominal binder if diaphragm muscles are weak

Page top
........................................

Assisted Cough (Quad Cough)

By having someone assist you in coughing, your cough will be more forceful and productive and you will be able to both prevent and treat some respiratory complications by bringing up secretions normally present in the lung.

Indications for an assisted cough are:
• Weak or ineffective cough, and/or
• Excessive secretions

Reasons to avoid an assisted cough are:
• Pain
• Internal problems, such as abdominal complications, where pushing on the abdomen could cause more complications
• Chest injury ( broken ribs)
• Flail chest, where the chest has excessive mobility, usually due to paralysis of the muscles which control it.

Following is the procedure for an assisted cough:
• Place the fist of one hand, immediately below the breastbone, and the heel of the other hand on top of the breastbone. The hands need to be over the diaphragm area.
• The hand position may vary from the illustration, but the hands must be below the ribs.
• Take a breath and cough as you exhale the air. Your assistant should push inward and upwards as you cough. NOTE: If you are on a ventilator, your assistant should push during inhalation. An ambu-bag may be substituted for the ventilator for a stronger cough.
• Repeat, as necessary, with rest periods, as needed, between efforts

Assisted coughing can be used while in bed or sitting up. Be sure the brakes of your wheelchair are locked before assisting cough. If lung congestion is present, assisted coughing is more effective when combined with postural drainage.

Email - inspirit1@comcast.net
IN SPIRIT, Box 383, Woodacre, CA 94973 Phone - 415-488-0477 Fax - 415-488-4870

back to top